Little Girls Room

I have decided to decorate my grandaughters room.My daughter and her children moved home and I havent had the energy to do it till now.I am gonna do it an old girlygirl look lots of lace and pinks and yellow.Its a loft room and it is quite large.She has room for a sitting area so she can have tea partys for her friends.wWe have been looking at pictures and she knows what she wants.She is so girly.Lots of ribbons and flower arrangements.I want to make a canopy from PVC to attach to the ceiling and make curtains and valances for it.If anyone has any ideas I would love them.She is a special and sweet little girl and I really want her room to be special.

Alot To Do

Well my friends its been along time since I have written and I must say my life has changed alot.I have been ill and I was in terrible shape hardly able to walk.I was told because of blood tests I had scleroderma witch is well a horrible and debilitating disease that well is not what you would ever want.I went to Johns Hopkins and they said no don't believe that's what you have.I have been seeing a rheumatologist and have been put on vit D that I was low in my blood and have had a few other meds that have been on and switched to something else but I am feeling much better.It doesn't hurt so much to walk now.I no longer work I stay home and watch my grandchildren and keep my house and well that is work.My job was making me even sicker.I have Raynauds and they kept it so cold that I would be in pain everyday.I don't want a pity party I am getting much better.My home life is well crap but whatever.My husband cant handle a wife that's sick so well.The wife that is well and bring in a paycheck and does everything else is what he can handle.Enough about that.I want to get back into crafting and I have to take it slow but please bear with me.I started this blog because I love crafting and being creative and that loves is still in me.My favorite is working with wood and making things I can use.I love prims and have at least alot of ideas I want to do.If  I see something I can usually figure out how to do it without plans so it takes me some trial and error but it works for me.I have been to thrift shops and did some re dos and really enjoyed that.Old and well some things that looked pretty tacky have turned out great.I am no great writer but its readable.I have to get my frustration out somehow.I cant believe how my life has changed in one year.Last August I started getting a burning in my feet and my knees hurt.I started gaining weight though I was eating less.I have had alot of other illnesses for the past couple years and though maybe it was from them.I got weak and tired doing practically nothing.Getting out of bed was awful because the pain in my feet and knees was horrible.Sleeping was bad I would get little charlie horses everywhere even my stomach,well that is the only way to describe it.I had terrible depression not knowing what was wrong with me or what was next.I had no loving husband to hold my hand and help me through it just the opposite.My daughter became my support system.She listened and went to my dr appt with me.She was my shoulder to cry on and was the one I could depend on to make me laugh and take my mind off the crap I was dealing with.I am feeling stronger and its a good thing cause my marriage is going to hell.I  cant believe how my life is but I need to get it headed in the right direction and I hope my blog will be a saving grace for me.My grandchildren keep me on my toes so that keeps me mobile and if I don't keep moving around I start hurting more .I am doing alot more to get right so it cant be wrong.I am on prednisone and despite what I have read I am losing weight.I have more energy and I feel I will get better.The dr cant figure out what is wrong with me but if it is my immune system gone haywire the prednisone represses the immune system and hopefully it will get right once I am off of the meds.I have 5 more weeks and well I guess we will see.My wood is in my loft above my carport and I am still alittle scared to try to go up for it but I am gonna try latter today so we will see.Might get something going for tomorrow.I hope I haven't made anyone feel bad cause I need this and well I felt I needed to catch up.If nothing else happens I am back and ready to get started.

So Sorry For Not Posting

    I havent posted for awhile cause I havent felt well.I found out reciently the reason why.I went to the dr. because my index finger was swollen at the knuckle,my knee was swollen and hurt and my feet hurt terribly.my Dr told me it was probably arthritis and had me go for blood work.My rheum test came out possitive so the didd more test which showed scleraderma.I had dark pigment on my stomach and back but never thought anything of it.I always had discolorations in my skin and was told it was lack of ortoo much malanin in my skin.It all makes perfect sense now why all the health problems.This disease is rare and Dr.s dont really look for it.They didnt put it all together.Everything I have read scares the crap out of me.I am trying to get in to see a rheumatolist who understands this disease and have to wait to get an appointment.I have developed more swelling and sometimes I can bearly walk.My energy is so low I dont even want to get out of bed somedays.Out of all the illnesses I could get this one has no cure.The Dr.s try to slow down the progression and treat the problems you have as they come along .It is a progressive disease .It will probably eventually if it hasnt already damage my internal organs .The kideys lungs and heart are usually the organs of choice for this disease though all are succeptable.Usually the lungs are what causes your death.It makes me mad and it makes me sad .I have always tried to be a good person .I have always tried to think of others first  .I always figured it was bad evil people who suffered terribly before death.I always figure thats the way it worked.My news year resolution is to always do what I can to be happy with what I have.I have my grandchildren that I cant bear to think of leaving.Well enough of the boo hoos.I  Will write whenever I can.I am sorry to put this in my blog but I feel pretty alone in this and my husband could care less.That is another story.